Had my 8th session of chemo at last thursday and came out of hospital on saturday. I also had my swine flu vaccine last week and felt terrible wednesday night had a temperature and went into jimmys on early thursday morning to check all was ok before i started chemo.
I had a call from the physio while i was having chemo and she said they wanted to try a new cad/cam method for builiding my prosthesis. This would mean if it worked i could have my false leg on the same day as my primary fitting. This is very exciting meaning i could be walking by january which i cant wait to start walking again. The frustration of been on crutches and in a wheelchair is unbelievable.
The charity ball is now confirmed for the 19th June aswell. Anyone wanting details please ask.
Matt
Sunday, 29 November 2009
Saturday, 21 November 2009
Chemo delays and the fall
My chemo has been delayed this time I have to go back this friday. Thid is due to my white blood count been to low which also means im more prone to infection fingers crossed I dont get a cold then. I had a bit of a tumble last week I was in pub with my friends and went to toilet I slipped on the wet floor and landed on my stump.
The pain was quite bad and I had to have some oral morphine to go to sleep that night, I also had to miss my physio the next day because of the bruising on my stump. The upside of missing chemo meant i got to go and watch footy this weekend which was good i seem to be alot more happier when am out and about and not in my house. I get more fed up sat about in the house but when im out somewere different im more happy. Chemo is due to finish in April now so im counting down the days till then.
Matt
The pain was quite bad and I had to have some oral morphine to go to sleep that night, I also had to miss my physio the next day because of the bruising on my stump. The upside of missing chemo meant i got to go and watch footy this weekend which was good i seem to be alot more happier when am out and about and not in my house. I get more fed up sat about in the house but when im out somewere different im more happy. Chemo is due to finish in April now so im counting down the days till then.
Matt
Sunday, 15 November 2009
Physio and other shit
Hey
Ive now had 4 sessions of physio and im getting more confident on my feet as phsyio goes on. Ive bin walking on a temporary limg i get my first proper limb on my birthday which is abit strange. Im fed up of been one legged now its really annoying cant do anything for myself. Also even though im beating the cancer i still get really fed up and sick of everything ive hated 2009 cannot wait till its over. This has been the worst yesr of my life by a mile and as soon as its over i can get back to getting on with my life.
Matt
Ive now had 4 sessions of physio and im getting more confident on my feet as phsyio goes on. Ive bin walking on a temporary limg i get my first proper limb on my birthday which is abit strange. Im fed up of been one legged now its really annoying cant do anything for myself. Also even though im beating the cancer i still get really fed up and sick of everything ive hated 2009 cannot wait till its over. This has been the worst yesr of my life by a mile and as soon as its over i can get back to getting on with my life.
Matt
Wednesday, 4 November 2009
Post 7th chemotherapy
Hey ive just had my 7th lot of chemotherapy. This set of chemo has been a lot milder and hopefully the side effects wont be as intense as the last 6. Ive bin abit fed up this week waiting for the post surgical results to see how dead my tumour is. For there to be a good response more than 90% needed to be dead
I got the phone call from Mr Tillman yesterday and he informed me the tumour was more than 95% DEAD and therefore the response was good and i would be having 7 more cycles of chemotherapy and my treatment would then be complete. Therefore at the end of MArch 2010 i will be able to go back to leading a normal life.
This is the happiest ive been for a while and it shows that the last 6 months have been worthwhile even though very hard.
Matt
I got the phone call from Mr Tillman yesterday and he informed me the tumour was more than 95% DEAD and therefore the response was good and i would be having 7 more cycles of chemotherapy and my treatment would then be complete. Therefore at the end of MArch 2010 i will be able to go back to leading a normal life.
This is the happiest ive been for a while and it shows that the last 6 months have been worthwhile even though very hard.
Matt
Sunday, 1 November 2009
Update on my leg
Its almost 2 weeks since my operation and my stump is healing well. Tommorow i go in for chemotherapy which will be milder than the chemo i was on before the amputation. Also i will be in hospital for less time which is good. The pain in my wound is mild now but the phantom pain and pins and needles from the nerve damage caused by the operation is starting to piss me off. Its a very strange sensation not really pain but a electric shock sort of sensation,
Last week i had my first physio which was good and i did more than i expected. I walked on a temporary false limb and a video of this can be found on my facebook site. Im pretty fed up to i cant wait to get my prosthetic so i can walk and get about without having to really on my family to do the simplest things for me like get me a drink or get me my tablets or get me my breakfast. Be good to be independant once again.
Bye for now
Matt
Last week i had my first physio which was good and i did more than i expected. I walked on a temporary false limb and a video of this can be found on my facebook site. Im pretty fed up to i cant wait to get my prosthetic so i can walk and get about without having to really on my family to do the simplest things for me like get me a drink or get me my tablets or get me my breakfast. Be good to be independant once again.
Bye for now
Matt
Sunday, 25 October 2009
The hardest week of my life
On sunday 18th October i travelled down to birmingham to be admitted to the Royal Orthapaedic Hospital for my amputation. The amputation would take place on monday morning. Considering what i was about to have done i slep fairly well on sunday night and woke early monday to sign the consent form.
My dad and step mum were there and they came down with me as far as they could go to the operating theatre. I hugged my step mum and i saw tears in her eyes, hugged my dad and knew he was trying to hide the tears aswell. This is when it sunk in were i was going and when i next woke up i would have half a leg missing. I was petrified the nurses had to calm me down abit and they were very reassuring and i realised that even though i was losing half a leg it was necessary to save my life. Without getting rid of the tumour i would die so it was definately for the best.
I woke up in the operating theatre and asked for Mr Tillman (the surgeon) i shook his hand and thanked him for doing what was right and removing the tumour from my body. I then past out again and woke again in recovery. I didnt realise but i had actually being away from the ward for 4 hours so my dad and step mum were panicking abit. So were the rest of my family at home waiting for news on my condition.
For the first 24 hours after the op i had an epidural so i was numb from the waist down which was strange. This was to make sure i did not wake up in any pain after the op. My reaction to waking up with half a leg missing was quite calm and everyone elses seemed calm to. The week in hosptial was quite relaxing if im honest. I started my physio on a zimmer frame and got my balance quite quickly and moved onto crutches i was abit wobbly at first but i think this was down to the epidural still having an effect. The day after i learnt how to walk up and down stairs which was more difficult but i still picked it up quickly.
After going into hospital on sunday i was going home on the friday which at first was a happy day and slowly turned into the day from hell. I had severe travel sickness on the way home and i felt so ill i just wanted to be back in hospital. I however did get home and went straight to bed and slept it off.
To finish off the last week has being the hardest week of my life ever. Coming to terms psychologically with an amputation is hard i put on a calm and positive front and thats how i feel most of the time. But it is also frustrating and upsetting being disabled for the next 6 weeks while it heals. Ino im not going to be able to do things i want for a while and im defo finding it hard at the minute the tiredness, the whole amputation, starting chemo again and physio its going to be a long tough ride and im glad ive got such a fantastic support base.
One las thing thank you to my dad, step mum, mum, step dad and brother phil and sis in law michelle for keeping me company in Birmingham you all helped keep my spirits up. And thank you to all the gifts cards and messages of support i recieved. The whole support is overwhelming.
Matt
My dad and step mum were there and they came down with me as far as they could go to the operating theatre. I hugged my step mum and i saw tears in her eyes, hugged my dad and knew he was trying to hide the tears aswell. This is when it sunk in were i was going and when i next woke up i would have half a leg missing. I was petrified the nurses had to calm me down abit and they were very reassuring and i realised that even though i was losing half a leg it was necessary to save my life. Without getting rid of the tumour i would die so it was definately for the best.
I woke up in the operating theatre and asked for Mr Tillman (the surgeon) i shook his hand and thanked him for doing what was right and removing the tumour from my body. I then past out again and woke again in recovery. I didnt realise but i had actually being away from the ward for 4 hours so my dad and step mum were panicking abit. So were the rest of my family at home waiting for news on my condition.
For the first 24 hours after the op i had an epidural so i was numb from the waist down which was strange. This was to make sure i did not wake up in any pain after the op. My reaction to waking up with half a leg missing was quite calm and everyone elses seemed calm to. The week in hosptial was quite relaxing if im honest. I started my physio on a zimmer frame and got my balance quite quickly and moved onto crutches i was abit wobbly at first but i think this was down to the epidural still having an effect. The day after i learnt how to walk up and down stairs which was more difficult but i still picked it up quickly.
After going into hospital on sunday i was going home on the friday which at first was a happy day and slowly turned into the day from hell. I had severe travel sickness on the way home and i felt so ill i just wanted to be back in hospital. I however did get home and went straight to bed and slept it off.
To finish off the last week has being the hardest week of my life ever. Coming to terms psychologically with an amputation is hard i put on a calm and positive front and thats how i feel most of the time. But it is also frustrating and upsetting being disabled for the next 6 weeks while it heals. Ino im not going to be able to do things i want for a while and im defo finding it hard at the minute the tiredness, the whole amputation, starting chemo again and physio its going to be a long tough ride and im glad ive got such a fantastic support base.
One las thing thank you to my dad, step mum, mum, step dad and brother phil and sis in law michelle for keeping me company in Birmingham you all helped keep my spirits up. And thank you to all the gifts cards and messages of support i recieved. The whole support is overwhelming.
Matt
Sunday, 11 October 2009
Last nights charity event
On October 10th Craig Howe organised a charity event in aid of Teenage Cancer Trust and to raise awareness of my fight against Ewings Sarcoma. The event consisted of a charity gig and a raffle and the sale of teenage cancer trust wristbands. I would like to thank craig for organising the event. I would also like to thank Jason and Gail Pickersgill who provided me with a brand new laptop free of charge which is very appreciated.
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